Expertise
• Professional practice and patient-perspective studies,
• Implementing of solutions to improve healthcare.
Solutions
Obtain an overview of current medical practice to improve healthcare:
• Professional practice studies (identify unmet needs, evaluate knowledge about practices, understand healthcare networks, epidemiology)
• Patient-perspective studies (assess the impact of disease, PROMS, PREMS, relation between patient and healthcare practitioners)
• Publish results in peer-reviewed journals
Inspiration for improving the medical ecosystem thanks to collaborative tools:
• Guidelines
• PSP community pharmacies
• Teleexpertise
• Creation of scales, register-AI
Resources :
a multidisciplinary team, including:
• Health economists
• Pharmacists
• Logistical experts (online, by phone, face-to-face)
• Experts in data protection
• Quality assurance experts
• Biostatisticians
• Medical writers
We have validated procedures that are continuous refined.
| Année | Publications et communications | Référencements |
|---|---|---|
| 2024 | Evaluation of Adherence to Berotralstat in Patients with Hereditary Angioedema: A Prospective Survey in Community Pharmacies | 2024 AAAAI Annual Meeting |
| 2024 | Evaluating the current physicians’ knowledge and patients’ pathways for diagnosing transthyretin cardiac amyloidosis (ATTR-CM) in France: An extensive survey of diverse medical specialists | JESFC 2024 |
| 2023 | Current practices and access to cardiac bone scans for the detection of TTR cardiac amyloidosis based on the results of a large national electronic survey | EANM 2023 |
| 2023 | Etat des lieux national de la prise en charge de la myasthénie autoimmune | 27ème journée SFNP |
| 2023 | Mise au point sur les angiœdèmes héréditaires et leurs nouvelles thérapeutiques | DOI:10.1016/j.revmed.2023.01.020 |
| 2022 | Long-term prophylaxis in hereditary angioedema management: current practices in France and unmet needs | DOI:10.2500/aap.2022.43.220046 |
| 2022 | French clinical practice guidelines for the diagnosis and management of lung disease with alpha 1-antitrypsin deficiency | doi.org/10.1016/j.rmr.2022.06.002 |
| 2022 | French practical guidelines for the diagnosis and management of idiopathic pulmonary fibrosis - 2021 update. | doi.org/10.1016/j.resmer.2022.100948 |
| 2021 | Angiœdème héréditaire : de nouveaux besoins non-satisfaits émergent à mesure que l’arsenal thérapeutique s’enrichit | Rencontres RARE 2021 |
| 2021 | Hereditary angioema : Evolving unmet needs as therapies are enriching | EAACI Hybrid Congress 2021 |
| 2021 | Profil clinique et qualité de vie des patients asthmatiques sévères de phénotype T2 traités par biothérapies en France : résultats en vraie vie de l’étude multicentrique « Second Souffle » | doi.org/10.1016/j.rmra.2021.11.049 |
| 2020 | RegardsCroisés : a national survey on clinical pathways of patients with Fabry disease | WORLDSymposium 2022 San Diego |
| 2019 | IN-FOCUS France: an epidemiological survey on severe hypertriglyceridaemiae assessing the comparative burden of illness of familial chylomicronaemia syndrome (FCS) and multifactorial chylomicronaemia syndrome (MCS) | DOI:10.1530/endoabs.63.P992 |
| 2019 | Télé-PID : une plateforme pilote de télé-expertise radiologique et clinique en cas de suspicion de FPI | CPLF janv. 2019 / Rare 2019 |
| 2019 | The perceived burden of hyperchylomicronemia syndromes depends on genetics and history of acute pancreatitis | NSFA juin 2019 / Rare 2019 |
| 2018 | Enquête sur le vécu et les attentes des patients atteints de fibrose pulmonaire | CPLF janv. 2018 |
| 2018 | Enquête sur la prise en charge des patients atteints d’hyperchylomicronémie familiale en France | doi.org/10.1016/j.ando.2018.06.192 |
| 2017 | Healthcare pathway and patients’ expectations in pulmonary fibrosis | doi/10.1183/23120541.00134-2016 |
| 2017 | French practical guidelines for the diagnosis and the management of idiopathic pulmonary fibrosis -2017 Update- | doi.org/10.1016/j.rmr.2017.07.017 |
| 2015 | 2ème enquête de pratique sur la prise en charge de la fibrose pulmonaire idiopathique en France | CPLF janvier 2015 / JNFPI avril 2015 |
| 2015 | Adherence to guidelines in idiopathic pulmonary fibrosis: a follow-up national survey | doi.org/10.1183/23120541.00032-2015 |
| 2014 | Management of idiopathic pulmonary fibrosis in France : A survey of 1244 pulmonologists | doi.org/10.1016/j.rmed.2013.11.017 |
| 2014 | Enquête sur le vécu et les attente des patients atteints de PID dans 4 régions pilotes | CPLF janvier 2014 |
| 2014 | Diagnosis and management of idiopathic pulmonary fibrosis: French practical guidelines | doi.org/10.1183/09059180.00001814 |
| 2013 | Recherche et mise en place de solutions efficientes dans le cadre du parcours de soins des patients atteints de pneumopathies interstitielles diffuses | RARE novembre 2013 |
| 2013 | Enquête sur le vécu et les attente des patients atteints de PID dans 4 régions pilotes | RARE novembre 2013 |
| 2013 | Recommandations pratiques pour le diagnostic et la prise en charge de la fibrose pulmonaire idiopathique | doi.org/10.1016/j.rmr.2013.09.007 |
| 2012 | Fiche de Discussion MultiDisciplinaire dans le cadre du diagnostic de la Fibrose Pulmonaire Idiopathique | SPLF décembre 2012 - Push mail FFP décembre. 2012 |
| 2012 | Management of idiopathic pulmonary fibrosis in France : A survey of 1244 pulmonologists | JNFPI 2012 |
